World Sarcoidosis Awareness Day!

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World Sarcoidosis Awareness Day

World Sarcoidosis Awareness Day!

Today, April 13, 2024, is world #Sarcoidosis awareness day! I wanted to take part in this campaign and share a little information about the disease, from my own experience, because I was diagnosed with it.

I was diagnosed with Sarcoidosis back in like .. 2014? As far as I know I’ve never experienced any issues with it as it’s been dormant ever since the diagnosis, but I figured I should share something. Awareness is a good thing, even though I don’t have much to say about it.

Shortly after a fishing trip in the Sibbald area, I developed pinkeye. I had never had it before, and haven’t since, but it was pretty awful. While it was at its worst I went and checked myself into the Sheldon Chumir emergency centre to see if a doctor could prescribe something that might help.

While I was being checked out, the doctor noticed I also had a pretty bad cough and decided to get some x-rays (they have a machine right there). The x-rays came back showing some enlarged lymph nodes. She booked me a referral to a specialist. I went, they put me under and did a biopsy on my lungs.. which confirmed Sarcoidosis. Fun!

“Sarcoidosis is an inflammatory disease in which the immune system overreacts, causing groups of cells to form clusters of inflamed tissue called “granulomas” in one or more organs of the body.”

The real danger from it is when flare ups happen and vital organs develop these granulomas. They can graft together with other inflamed tissue and stuff, causing serious complications. You’re in for a real bad time if they begin to do it in the lungs, eyes or heart.

After my diagnosis, because Sarcoidosis often affects the lungs and can more easily be detected, I went in for annual breathing tests to measure my lung capacity. I did this for 4 or 5 years before they said it was no longer necessary as things are good.

I believe my diagnosis is officially “Pulmonary Sarcoidosis” but I can’t remember. It hasn’t been a concern for years and I never think about it. There are several types, such as Renal Sarcoidosis, Skin Sarcoidosis, Cardiac Sarcoidosis, etc.

That’s it. It’s dormant and has never flared up again. Hopefully it never does again.

Nobody knows what causes Sarcoidosis but there are theories that it’s an autoimmune response to some kind of substance or infection. There is no cure either, though there are medications that can help reduce the symptoms when flare ups happen.

More reading: https://www.mayoclinic.org/diseases-conditions/sarcoidosis/symptoms-causes/syc-20350358

Check out the Canadian Sarcoidosis Organization for more: https://cansarc.com

Sarcoidosis Facts

• Sarcoidosis can affect people of any race or ethnicity, but it’s more prevalent and tends to be more severe in African Americans and individuals of Scandinavian descent.

• The symptoms of sarcoidosis can mimic other diseases, making diagnosis challenging and often requiring a multidisciplinary approach.

• In some cases, sarcoidosis can lead to complications such as pulmonary fibrosis, cardiac arrhythmias, or neurosarcoidosis (involving the nervous system).

• The severity and course of sarcoidosis vary greatly among individuals, ranging from asymptomatic to severely disabling.

• Environmental factors, such as exposure to certain chemicals, pollutants, or infectious agents, have been proposed as potential triggers for sarcoidosis, but their role is not fully understood.

• The course of sarcoidosis can be unpredictable, with some individuals experiencing spontaneous resolution of symptoms while others may have chronic, relapsing disease.

• Sarcoidosis can affect fertility in both men and women, but it typically does not affect pregnancy outcomes.

• Rarely, sarcoidosis can affect the bones and joints, causing symptoms such as arthritis or bone lesions.

• Research suggests that genetic factors may play a role in predisposing certain individuals to sarcoidosis, although the specific genes involved are not fully understood.

• While sarcoidosis is not directly contagious, clusters of cases have been reported, suggesting possible environmental or infectious triggers that warrant further investigation.

#SarcoidosisAwareness
#SarcoidosisAwarenessMonth
#WorldSarcoidosisDay
#WorldSarcoidosisAwarenessDay

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